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APPENDIX IV

The Principles of Palliative Care

Palliative care is governed by certain principles, which guide the care given. It:

Provides relief from pain and other distressing symptoms

Affirms life and regards death as a normal process

Intends neither to hasten or postpone death

Integrates the psychological and spiritual aspects of patient care

Offers a support system to help the family cope during the patient’s illness and in bereavement

Uses a team approach to address the needs of patients and their families, including counselling, if indicated

Will enhance quality of life and may positively influence the course of the illness

Is applicable early in the course of the illness, in conjunction with other therapies that may prolong life, such as chemotherapy or radiation therapy, and includes investigations needed to better understand and manage distressing clinical complications. (World Health Organization, 2004)

Other principles of palliative care promote:

Quality of life: palliative care tries to enhance this as much as is realistically possible

Patient choices: patient autonomy is respected and encouraged as much as possible

Open communication

Looking after the whole person which includes physical, emotional, psychological, spiritual and intellectual issues

Looking after the whole family because the patient is not an isolated unit but part of a whole social unit. Their disease, and its effects may have catastrophic influences on this social unit and its dynamics.

Involving support from the whole multi-disciplinary team (MDT): this includes professionals in the hospital and community such doctors, nurses, palliative care specialists, hospice services, dieticians, physiotherapists, occupational therapists, and chaplaincy. (Regnard and Kindlen, 2002)

Hydration, nutrition, sedation and pain relief in end-of-life care

Adapted from Palliative Care Resuscitation by Madeline Bass, published in 2006 by John Wiley and Sons: pp. 8, 13-14 and 113-115.

The subject of whether to use artificial hydration and nutrition in terminally ill patients, which could be included under the cloak of ‘active treatment’, has brought about different points of views. Rousseau (2000) states that many doctors and nurses feel food and fluid is always a basic need for human existence. However, although this is true, tube-feeding terminally ill patients (either via nasogastric, nasojejunostomy, gastrostomy or via parenteral routes, such as total parenteral nutrition - TPN) has not been found to enhance or prolong life. Remember, tube-feeding in no way resembles normal eating since it is a passive process that totally bypasses the sensory part gained from oral feeding: there is no smell, taste or texture of feeling food in the mouth. Tube-feeding can also have serious complications such as aspiration, nasal cartilage erosion, and tube displacement, which may require an uncomfortable, perhaps even painful, replacement.