Elly herself can end this chapter better than I can. We shall watch her as she plays with her new map, the one she insisted on getting as soon as she saw it in the college office. I saw no reason to bring it home, as she already had one posted, but we did, and with uncharacteristic effort she has found some tape and has put it up near the other. ‘42a,’ she says. ‘42a this map. This? This?’ I do not understand, but her insistence makes me examine the map and I perceive what evidently she has known all along. The maps look identical but they are not. Five or six buildings, perhaps, out of a hundred have been altered or replaced, necessitating a revised legend; 42a is a new addition.
Elly continues: ‘Zero heating plant?’ I contradict; understanding her to mean ‘no heating plant’, I reassure her. ‘One heating plant, there’s the heating plant.’ But she goes on saying it. I do not understand why until she takes my pencil and herself writes in a zero by the picture of the building. Then I see that all the other buildings are numbered. Only the heating plant is not. ‘They forgot,’ I say, falling into one of our familiar frames. ‘They forgot!’ crows Elly, over and over again, eight, ten times in succession. I hear her, but my eyes are elsewhere, and I do not notice what she is doing. When I look up I see that she is laboriously printing, as the first item in the legend O HEATING PLANT. She miscopies, but she does not lose her cool. ‘They forgot!’ She erases, corrects. ‘Forgot!’ And we go down to breakfast, after one half hour of happy activity.
After breakfast she returns to the map. Fascinated, she enjoys it, singing a little song. Now and then she tenses, shivers in a paroxysm of pleased excitement, but mostly she is relaxed, absorbed in the delights of notation, enjoying the relation between abstraction and reality. ‘Walk downtown?’ And in her mind she does. ‘Don’s cross-uh street! Buy six M-uh-M? Buy four Necco? Buy seven shoestring candy? Buy five gumdrop! Little gumdrop. Get out-uh candy store. Go bakery. Buy-uh two cookie. Get-uh one big cake. Get-uh lot-uh cupcake. Go drugstore. Get a tempacan [temperature = thermometer]. Elly too sick [she is laughing]. Buy three new bottle. No. Zero bottle. Buy eight candy box. Buy nine new gumdrop. Buy ten new candy box. Buy eleven star candy. Buy fourteen new Necco. Lot-uh new M-uh-M?’
The hairs of her head are numbered.
15. Now and Later
Elly has been under siege now for six and a half years. What is she like today?
Someone who saw her now for the first time and had no knowledge of her history would probably not think her autistic at all. Speech penetrates to the ears that for so long seemed not to hear; the eyes that saw not can now register the full variety of the world. The autistic isolation itself is much attenuated. Seeing her laughing and squealing with her sisters or enjoying the marshmallow game with her father, an observer might remark the immaturity of her affection but he would not think of her as a child particularly withdrawn. It might even be possible for him to hear her sense of community break through into words, as when, taking a hand mirror, she snuggles close, contemplates our two images in the mirror, and says ‘Mamma love you!’
If he came when I was out he could see how she relates to someone who is not a member of the family — to the warm, understanding woman whose help makes it possible for me to get away at all. Mrs Gerry’s best qualifications are her own six children and eighteen grandchildren. She brings Elly surprises, lets her watch while she mixes and bakes, persuades her to pull her boots on, gives her firm and loving discipline when she gets out of line. Elly goes to stores with her, visits her at home. ‘Mrs Gerry ha’ colour TV!’ Like the live-in mother’s-helpers I can now do without, Mrs Gerry is another focus of Elly’s increasing capacity for affection.
One no longer has to be a miracle worker to reach her; any friendly person who is at home with two-year-olds can do it. If you were to come to our house and wanted to get to know Elly,it could easily be done. She would indeed pay no attention to you at first, as she has come to expect that adults begin by talking in ways she cannot understand. So I would put her hand on yours to bring you into contact,[33] tell her your name, and from then on it would be up to you. If you roughhoused with her, or drew pictures or provided candy or took her for a ride, she would ‘relate’ to you as satisfactorily as you please, smiling, laughing, taking part in your games, even talking about them. If, however, you asked her hard questions, like what her name is, or talked in language above a three-year-old’s comprehension, she would lose interest. She would ignore you again — not look through you or beyond you, as long ago, but ignore you as any child ignores an uncomprehending adult.
If you were then to turn your attention to me and we were to talk at any length she would become restive, then demanding. ‘Mama talk!’ she would complain, but her annoyance would go no farther into speech than that. It would express itself in undifferentiated squeals and creaky-door noises, in a crescendo of anxious, edgy (but still ludicrously accurate) evocations of rock-and-roll, in tense and jerky dancing up and down, in awkward imitations of falling down — perhaps if it all went on too long, in crying. I would either terminate the conversation then or take a firm stand: ‘Sometimes I talk to you, sometimes I talk to other people.’ Elly would then retire, probably to her bed, and bawl, and after a while she would stop and I would hope everything was all right and that this experience would be, not a trauma, but in fact what I wished it — one more infinitesimal step towards the realization that she cannot totally possess even those whom she loves best.
I am going to interrupt the narrative at this point. Where Elly is today can best be communicated, not by summary and interpretation, but by presenting a few glimpses of her as she has appeared in action at different times in recent months. The reader will be able to make his own interpretations — among them, no doubt, some I have not thought of — and judge for himself how far Elly has come and how far there is still to go-
Elly is in her room playing with her dollhouse. Having picked up some of the scattered toys and books, I am sitting near her on the floor occupying myself with an interlocking gear toy. I am bored and quiescent. Elly is playing well, with little reference to me, but if I read she will find a way to bring my attention back and if I go away she will stop and follow me. I have learned that it works best to saturate her desire for community, to let her possess me completely for an hour or two; then when she has had all she can use she will be ready to do without me — for a little while.
Now she is perching all the little dolls in a row on the doll-house roof. She has a lot of them — the conventional family and many extras. She moves the hinged roof and they all fall down. She laughs with pleasure; clearly, that’s why she put them up there. I suggest, without emotion, that they are crying, are hurt. She laughs some more, says ‘Can’t ha’ supper on roof!’ I agree. She begins to imitate, in a high falsetto, the sound of dolls crying, with excited amusement. Noticing my gear arrangement, she has an idea: ‘Doll go merry-go-round, feel better.’ She puts them all on the merry-go-round, one per gear, and they stop crying, ‘Wan’ be happy, yes!’ says Elly. One doll begins to cry again. Elly puts her back on the roof, again to fall. ‘Poor girl,’ she says, laughing.
‘Ride-uh-boat?’ She neatly sits them all in her pull-toy ark, a game I suggested some two weeks before. I had, in fact, suggested that the boat take them to the A & P, since Elly had remarked that they had no car and could not go. But I’ve forgotten this, and so I ask if they are going to the island in the ferry. But of course they are going to the A & P. They will continue going there, and the dolls will continue falling off the roof; new ways to play do not come easy. Yet they come, bringing with them two questions which are perhaps only one: why do they come at all, or why do they not come more often?
33
I remember the question of a psychologist-friend who came to visit: ‘Did the psychiatrist say you could do that?’ I said I hadn’t asked him, but that when he saw Elly he seemed very pleased with her progress. ‘It certainly is an unusual arrangement,’ she said.